Data Integration Strategies and Implementation (DISI)
This approach leverages health information exchange, data standards, technologies, and processes to:
- Integrate data from disparate sources
- Ensure person-centered monitoring
- Enable care that serves both the needs of the patient and program goals
Data Integration Use Cases
Content in active development and coming soon.
DISI Overview
Products
DISI HIV CBS Architecture, Requirements, and Metadata
The functionality of an HIV CBS system, from a programmatic perspective, is dependent on key components which are agnostic to specific technologies and implementations. These components together achieve the goal of integrating data from multiple sources while ensuring the availability of quality data in a manner that ensures privacy, security, and confidentiality.
The conceptual architecture product describes how the different system components are linked together to support an end-to-end workflow for HIV Case Based Surveillance.
Minimum data set required to capture all sentinel events for HIV Case-based surveillance mapped to standard clinical terminologies and OpenMRS concept codes.
Functional and Nonfunctional requirements for DISI
DISI business processes
Solutions
The Patient matching algorithm alternatives document describes the process that must be followed in order to derive the optimal patient matching algorithms that can be used for varying identifier consistency in order to match patients’ records. It includes the common scenarios for duplicate patient records and the step-by-step process that can be followed for the different scenarios.
The following patient matching and linking toolkit provide various tools that can be used to assist countries when trying to identify an optimum algorithm and patient matching strategy.
The Client Registry Assessment product outlines the technical and functional evaluation of the global good products, OpenCR and SanteMPI.
Link to CR assessment (In Progress)
The Data Repository (DR) product outlines the technical solution designed for the DISI MVP; it includes the high-level patient record data structure on the DR and how it is combined with the Client Registry (CR) data to be used for later analysis, reporting, and visualization. In addition, it describes how data from different source systems is managed so that a single longitudinal record is considered.
This data exchange product describes the data exchange processes and workflows between components as well as the recommended standard messaging formats to support HIV Case Based Surveillance.
This solution demonstrates the DISI MVP for data centralization and reporting for HIV case-based surveillance.
The architecture adheres to the OpenHIM framework consisting of the source system sending HIV CBS sentinel event data, via the OpenHIM and OpenCR Client Registry, to the HAPI FHIR CDR. Elasticsearch with Kibana reporting and analytics components display HIV CBS dashboards.
The documentation includes:
- User Guides
- Instructions to install this DISI demo solution locally.
- CBS FHIR IG (Implementation guide)
This solution demonstrates the OHRI DISI integration demo for data centralization and reporting for HIV case-based surveillance.
The documentation includes:
- User Guides
- Instructions to install this DISI demo solution locally.
- CBS FHIR IG (Implementation guide)
Policies and Procedures
This toolkit was developed based on the European Union’s General Data Protection Regulation on data protection and privacy. It was also strongly influenced by the data protection and data security regulations and policies from South Africa, Kenya, Uganda, India, and other countries.
The Health Data Access, Sharing, and Use Guidelines Development Toolkit is intended to support countries to strengthen the environment for health data access, sharing, and use, and to promote institutional data access, sharing, and use that are consistent with national laws and policies. The toolkit has three components: guidelines (including policy and agreement templates as appendices), implementation framework, and implementation assessment plan.
These procedures are a reference document for data management, from extraction to storage, following the principles of health data privacy, security, and confidentiality, to protect individual patient privacy and facilitate the exchange of health data for public health purposes consistent with best practices.
This DISI product provides guidance on the use of the integrated health systems security assessment package to assess the system's privacy and security and for instituting continuous monitoring of patient data privacy and security while at rest and/or in transit within an integrated information systems ecosystem. This package offers guidance for assessing data integration security and privacy that includes assessment protocol, assessment tools, and assessment plan.
Integrated Information Systems Security Assessment Guide (coming soon).
The guidance aims to illustrate who should have access to personally identifiable and sensitive information and how this information should be managed and used. This guidance can support the development of the DISI data security and governance policies.
Change management refers to processes, policies, and procedures and is the method and process of making changes to an organization’s IT systems. The change management process is designed with the intent of reducing errors when changes are made to IT systems, minimizing disruption, and reducing risk through the implementation of a clear change management process.
Capacity Development
To support users to implement DISI outputs, TAP implementing partners develop training and learning modules on different aspects of DISI for different users based on their needs. This template provides a framework for organizing DISI learning materials in a consistent manner.
- Privacy Security and confidentiality
- Change management procedures
- Minimum dataset definition for use cases
- User and technical documentation for DISI applications
To support users to implement DISI outputs, TAP implementing partners develop training and learning modules on different aspects of DISI for different users based on their needs. When specific training and learning materials become available, TAP will post links here.
