Data Repository Specification
DISI refers to the practice of centralizing and integrating HIV data in a central repository for further reporting, analysis and visualization. DISI enables healthcare professionals to effectively measure and monitor the progression and outcome of HIV through CBS sentinel events. According to the WHO, “sentinel events refers to a predefined event in the context of case surveillance for which relevant data are transmitted to the public health agency responsible for HIV surveillance”. HIV CBS sentinel events typically include data regarding HIV diagnosis, initiation of antiretroviral therapy, immunological testing (CD4 count and viral load exams), and death. HIV CBS sentinel events may also include events specific to monitoring children or pregnant women.
A nationally implemented system to help understand the progress in the HIV program using real-time data analytics will improve the measure of CBS sentinel events and monitoring towards a virally suppressed population. Thus, a national data repository (DR), a component of the Data Integration Strategies and Implementation (DISI) architecture, can be implemented to integrate data for longitudinal patient records, program management, and monitoring.
In this document, we present the technical solution designed for the DISI MVP to support the HIV case-based surveillance use case. This is in line with the OpenHIE framework.
This solution includes the high-level patient record data structure on the Data Repository (DR) and how it is combined with the Client Registry (CR) data to be used for later analysis, reporting, and visualization.
We also discuss how the data from different source systems is managed so that a single longitudinal record is considered.